Saturday,November 7

So, some time has passed since my last post and many of you are wondering what has happened and how Rex is doing. This week marks the twelfth week we have been in Tucson! The good news is that Rex is doing very well. So well that we will most likely be home sometime next week! Recovery since discharge has been slow going. This time around was much harder both physically and emotionally. Physically, Rex's body took quite a beating from the infection making it hard for him to stand much less walk. Physical therapy worked with him while we were in the hospital and since discharge he has been going to cardiac rehab three times a week. He is now up to the same level of intensity and duration as he was just prior to the infection and continuing to improve daily. Emotionally speaking this has been a ride for us both. Rex was sedated for most of the hospital stay and he has had many questions and is still working on digesting all the information. While we know that the particular infection he contracted was rare, he is still fearful of getting sick again. Being immunosuppressed is a scary place to be, especially with the flu season rearing it's ugly head everywhere we turn. We are praying that this is the only obstacle we will need to face post transplant.

So far all the tests results look good. The infection appears to be beaten and all of Rex's biopsies have come back negative. He does appear to have some blood clots in his lungs which they are treating with Warfarin, a very strong blood thinner. Other than that all is looking really good. Once we are home Rex will need to return to Tucson monthly for biopsies, but all other tests and clinic appointments can take place in Phoenix.

My ongoing prayer has been that Rex would stay healthy and continue to grow stronger each day. Also, that Rex would release his fears and instead focus that energy onto this faith.
"For God gave us not a spirit of fearfulness; but of power and love and discipline." 2 Timothy 1:7

-Janelle